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She was told she wouldn’t live past her 8th birthday. Now, her life’s mission is to fight for patients with this deadly disease

Remarkably, she overcame her prognosis and has now made it her life’s mission to fight for patients suffering from this deadly disease. In order to assist her, here are a few steps to consider:

1. **Awareness**: The first step should be to raise awareness about this disease. Use platforms like social media, blogs, websites, newspapers or magazines to educate people about its risk factors, symptoms, and the necessary precautions to take.

2. **Fundraising**: Start fundraising campaigns for research and development of treatments or potential cure. The funds can also go towards supporting patients who cannot afford the treatment.

3. **Patient Support**: Create a community or support group for the patients where they can share their experiences, challenges and provide moral support to each other.

4. **Lobbying for Patients**: Push for policy changes for the benefit of patients and ensure they get the necessary treatment and support. This can be done both at a local and national level.

5. **Collaboration**: Partner with medical institutions, researchers, and other organizations working on this disease. Effective collaboration can help accelerate the process of finding a cure or improving treatment procedures.

6. **Research**: Keep yourself updated with the latest research and technology related to the disease. Information is power and this can help her advocate better for patients as well as find the most effective treatment options.

7. **Caregiver Support**: Often, caregivers also need support and resources to better assist patients. She can provide help and

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